These organizations are focused on other types of LGMDs. We are partnering with them to advance research and raise awareness about LGMD when there was a clear benefit to the LGMD2I community.
Cure CMD (Congenital Muscular Dystrophy)
Cure CMD is a non-profit organization focused on finding treatments for congenital muscular dystrophy (CMD). Launched in 2008, Cure CMD has established the infrastructure to drive clinical trial readiness for the congenital muscular dystrophies and congenital myopathies through the limb girdle spectrum. It operates the Congenital Muscle disease International Registry (www.cmdir.org), a CMD BioBank and Tissue Repository, as well as CMD Traveling Clinics in partnership with the Bönnemann team at the National Institute of Health. Cure CMD published Care Guidelines, provided ongoing support to the community through publications, webinars and online support groups.
TREAT-NMD was initially established as a EU funded “network of excellence” with the remit of “reshaping the research environment” in the neuromuscular field. The network has developed from its European roots to become a global organization bringing together leading specialists, patient groups and industry representatives to ensure preparedness for the trials and therapies of the future while promoting best practice today.
Coalition to Cure Calpain 3
Coalition to Cure Calpain 3 provides support for promising research into finding treatments or a cure for limb-girdle muscular dystrophy, type 2A/Calpainopathy (LGMD2A).
The Jain Foundation is a non-profit foundation whose mission is to cure muscular dystrophies caused by dysferlin protein deficiency, which includes the clinical presentations Limb-girdle muscular dystrophy type 2B (LGMD2B) and Miyoshi muscular dystrophy 1 (MMD1).
Kurt & Peter Foundation
The Kurt & Peter Foundation was formed by Kurt and Peter’s family and friends to raise money and direct it into the hands of researchers who have the best shot at developing a treatment or cure for LGMD2C.
The LGMD2D Foundation is a registered 501(c)(3) non-profit foundation whose mission is to expedite the development of a cure or therapy for LGMD2D.