National LGMD Conference
Aug 30 - Sept 2, 2019 in Chicago, IL
The mission of this conference is to provide momentum to emerging treatments. The National Limb Girdle Muscular Dystrophy Conference exists to demonstrate to venture capitalists and biotechs that the LGMD patient community is robust, mobilized, and ready to aggressively advocate for effective treatments that are developed. At the Hyatt Regency Website
5th Annual LGMD Awareness Day
September 30 in USA
Awareness: (syn) information, perception, recognition, understanding, appreciation, familiarity! Everything about LGMD2I and LGMD in general we wish to increase in the general public!
You can make September 30 a special day by becoming an ambassador and a requesting state proclamation to your governor (link)