News & Events

Dr. Wicklund’s LGMD conference

August 11, 2015


4th International Workshop for Glycosylation Defects in Muscular Dystrophies

February 3, 2015

The Carolinas Medical Center will bring together scientists and clinicians working in the field of the dystroglycanopathies for its “Fourth International Workshop for Glycosylation Defects in Muscular Dystrophies”, on April 16/17, 2015. For more information on the workshop please go to:

Save the date: Dystroglycanopathies Family Conference 2015

January 26, 2015

SATURDAY August 15th, 2015 – Iowa City The Iowa Wellstone Center presents The Dystroglycanopathies: 2015 Patient and Family Conference Featuring talks from physicians and researchers, Q&A, laboratory tours, networking, and social gathering. Appointments for study exams available Friday August 14th and Sunday August 16th. Event information and registration forms will be available soon! Questions? Contact  Continue Reading »

Free diagnostic program for the LGMDs

October 3, 2014

We are excited to announce the release of a new diagnostic program for the LGMDs! We have joined together with several other LGMD family foundations to create a new website where undiagnosed individuals with a muscle problem can take a quiz to see if they qualify for free genetic sequencing, sponsored by our consortium  Continue Reading »

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